“Are you stressed?” asked my boyfriend, John. “No”, I replied, tensely. “Not exactly. I know it’s my head, but I just feel like I don’t have enough time today and, on this trip, to do everything I want! I’d like… Read More »Step One: Take your Time
“Aren’t you afraid you’ll get the virus if you travel now?” “Don’t you have more pressing health concerns that you need to take care of?” “Have you really packed everything you need?” “Won’t your boyfriend break up with you if… Read More »Fear or Gratitude?
My History I have an incurable, genetic disease called Tuberous Sclerosis Complex (TSC). A spontaneous visit to the emergency room for “stomach pain” when I was 25 revealed a softball-size tumor, and MANY other smaller tumors on my kidneys. That… Read More »My GoFundMe Campaign
I am standing in the emergency room. The doctor who just conducted my ultrasound has left. He was young and pretty unsure of himself. I’m rarely with doctors, but my brother is one. This one seemed overly nervous; I mean… Read More »How it All Began
Meine Geschichte Ich habe Tuberöse Sklerose (TSC) – eine unheilbare genetische Erkrankung. Als ich 25 war, wurde bei einem spontanen Besuch wegen „Magenschmerzen“ in der Notaufnahme ein tennisballgroßer Nierentumor entdeckt – neben vielen weiteren kleineren Tumoren in beiden Nieren. Das war… Read More »Meine GoFundMe Kampagne
Hello and WELCOME! Welcome to my website and my blog. I am Sophie, 31, a yoga teacher and lover of life. And I’m about to embark on an adventure. 🙂 If you’re interested to learn more, follow me on social… Read More »Welcome!